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Study identifier: NCT01659749 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria

Condition: Pregnancy · Phenylketonuria  ·  Sponsor: Emory University

PhaseNA
Planned participants200
Who can joinFemale, 11 Years to no upper limit
Healthy volunteersYes

About this study

The purpose of this project is to study the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attended Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.

This description comes directly from the study's public registry record.

Talk to the study team

Rani H Singh, PhD RD  ·  4047278519  ·  rsingh@emory.edu

Kristen Narlow, MS RD  ·  4047788610  ·  kristen.narlow@emory.edu

Always discuss trial participation with your own doctor first.

Locations (1)

Emory University Department of Human GeneticsAtlanta, Georgia, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT01659749