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Study identifier: NCT01633489 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Lysosomal Acid Lipase (LAL) Deficiency Registry

Condition: Lysosomal Acid Lipase Deficiency · Cholesterol Ester Storage Disease · Wolman Disease  ·  Sponsor: Alexion Pharmaceuticals, Inc.

PhaseN/A
Planned participants300
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

This is an observational, multi-center, international disease registry designed to collect longitudinal data and create a knowledge base that will be utilized to improve the care and treatment of patients with LAL Deficiency. Participation in the Registry by both physicians and patients is voluntary.

This description comes directly from the study's public registry record.

Talk to the study team

Alexion Pharmaceuticals, Inc. (Sponsor)  ·  1-855-752-2356  ·  clinicaltrials@alexion.com

Always discuss trial participation with your own doctor first.

Locations (104)

Clinical Trial SitePhoenix, Arizona, United StatesRecruiting
Clinical Trial SiteStanford, California, United StatesRecruiting
Clinical Trial SiteMiramar, Florida, United StatesRecruiting
Clinical Trial SiteOrlando, Florida, United StatesRecruiting
Clinical Trial SiteAtlanta, Georgia, United StatesRecruiting
Clinical Trial SiteChicago, Illinois, United StatesRecruiting
Clinical Trial SiteBoston, Massachusetts, United StatesRecruiting
Clinical Trial SiteDetroit, Michigan, United StatesRecruiting
Clinical Trial SiteMinneapolis, Minnesota, United StatesRecruiting
Clinical Trial SiteJackson, Mississippi, United StatesRecruiting
Clinical Trial SiteHackensack, NJ, 7601, New Jersey, United StatesRecruiting
Clinical Trial SiteNew York, New York, United StatesRecruiting

+ 92 more locations — full list on the registry record.

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Source record: clinicaltrials.gov/study/NCT01633489