Condition: 16P11.2 Deletion Syndrome · 16p11.2 Duplications · 1Q21.1 Deletion · Sponsor: Simons Searchlight
Simons Searchlight is an observational, online, international research program for families with rare genetic variants that cause neurodevelopmental disorders and may be associated with autism. Simons Searchlight collects medical, behavioral, learning, and developmental information from people who have these rare genetic changes. The goal of this study is to improve the clinical care and treatment for these people. Simons Searchlight partners with families to collect data and distribute it to qualified researchers.
This description comes directly from the study's public registry record.
Simons Searchlight Study Coordinator · 855-329-5638 · coordinator@SimonsSearchlight.org
Always discuss trial participation with your own doctor first.
| Boston Children's Hospital | Boston, Massachusetts, United States | Recruiting |
| Geisinger Health System | Lewisburg, Pennsylvania, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT01238250