Condition: Pediatric Hydrocephalus · Sponsor: University of Utah
The Hydrocephalus Clinical Research Network (HCRN) has been established by philanthropic funding to conduct multi-institutional research (clinical trials and observational studies) on pediatric hydrocephalus. In addition to philanthropic funding, the HCRN has also received an NIH NINDS Challenge Grant to support the network infrastructure which allows for the conduct of this and other network studies. The HCRN consists of multiple Clinical Centers and the Data Coordinating Center (DCC). The HCRN Core Data Project will obtain data about all neurosurgical hydrocephalus events from the network Clinical Centers, and create a database to be used by HCRN investigators. The ongoing maintenance of the Core Data Project serves two main purposes: 1) it will help investigators understand the variability, progression, and current treatment practices for hydrocephalus in children, with an ultimate goal of better guiding and assessing therapeutic intervention and providing recommendations on patient care and, 2) it will provide pilot and descriptive data necessary for hypothesis generation and study design (i.e. preliminary power analyses, recruitment projections) for studies under development by the HCRN. This multi-institutional database will be maintained throughout the lifetime of the HCRN, and may be useful for tracking trends in pediatric hydrocephalus over time. The Core Data Project will be an invaluable resource to the HCRN and will help stimulate new research protocols, identify …
This description comes directly from the study's public registry record.
Marcie Langley · 801-662-5364 · marcie.langley@hsc.utah.edu
Always discuss trial participation with your own doctor first.
| Children's Hospital of Alabama, University of Alabama | Birmingham, Alabama, United States | Recruiting |
| Children's Hospital of Los Angeles | Los Angeles, California, United States | Recruiting |
| Children's Hospital Colorado | Aurora, Colorado, United States | Recruiting |
| Johns Hopkins Children's Center | Baltimore, Maryland, United States | Not Yet Recruiting |
| St. Louis Children's Hospital | St Louis, Missouri, United States | Recruiting |
| Nationwide Children's Hospital | Columbus, Ohio, United States | Recruiting |
| Children's Hospital of Pittsburgh of UPMC | Pittsburgh, Pennsylvania, United States | Recruiting |
| Monroe Carell Jr. Children's Hospital at Vanderbilt | Nashville, Tennessee, United States | Recruiting |
| Texas Children's Hospital | Houston, Texas, United States | Recruiting |
| Primary Children's Hospital | Salt Lake City, Utah, United States | Recruiting |
| Seattle Children's Hospital | Seattle, Washington, United States | Recruiting |
| Alberta Children's Hospital | Calgary, Alberta, Canada | Recruiting |
+ 2 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT00670735