Condition: Primary Hyperoxaluria · Dent Disease · Cystinuria · Sponsor: Mayo Clinic
The purpose of this study is to collect medical information from a large number of patients in many areas of the world with primary hyperoxaluria (PH), Dent disease, Cystinuria and APRT deficiency. This information will create a registry that will help us to compare similarities and differences in patients and their symptoms. The more patients we are able to enter into the registry, the more we will be able to understand the Primary Hyperoxalurias,Dent disease, cystinuria and APRT and learn better ways of caring for patients with these diseases.
This description comes directly from the study's public registry record.
Julie B. Olson, RN · 507-538-5995 · rarekidneystones@mayo.edu
Mayo Clinic Hyperoxaluria Center · 1-800-270-4637 · hyperoxaluriacenter@mayo.edu
Always discuss trial participation with your own doctor first.
| Dent Disease Registry -Mayo Clinic | Rochester, Minnesota, United States | Recruiting |
| Primary Hyperoxaluria Registry - Mayo Clinic | Rochester, Minnesota, United States | Recruiting |
| Cystinuria Registry - New York University | New York, New York, United States | Recruiting |
| APRT Registry - Landspitali Universtiy Hospital | Reykjavik, Iceland | Recruiting |
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Source record: clinicaltrials.gov/study/NCT00588562